Work Patient Reported Outcome Measures in people with Rheumatoid Arthritis in the UK, Sweden and the Czech Republic
Work disability is high in people with rheumatoid arthritis (RA). Reliable, valid measures are required to identify workers with RA’s work difficulties, to plan and evaluate work rehabilitation and determine work service needs. This study will culturally adapt and test patient reported outcome measures (PROMs) of work for use in the UK, Sweden and the Czech Republic. The PROMs being tested assess: presenteeism (the Workplace Activities Limitations Scale) and six measures evaluating contextual factors affecting presenteeism (i.e. the Work Transitions Index, Arthritis Work Spillover scale, Perceived Workplace Support scale, Chronic Illness Job Strain scale, Workplace Accommodations, Benefits, Policies and Practices Scale, Work-Health-Personal Life Perceptions Scale). These measures were developed in Canada and need cross-cultural adaptation and psychometric testing before they can be used in other countries, as cultural and socio-economic settings differ.
This study, funded by the EULAR Health Professionals Grant is currently underway. Once the study is completed and the measures are validated, these measures can then be used in these countries to identify: patients’ at risk for poor work outcomes; their work rehabilitation needs; and effectiveness of work rehabilitation; as well as for research evaluating the impact of these conditions on working lives, and as outcomes in rehabilitation and other trials.
Study fundings will be announced through our Twitter account and the validated WORKPROMS will be accessible on this webpage upon the completion of the study . Please watch this space.
Meanwhile, if you are a working adult and considering to volunteer in this project, we are still recruiting people living in the UK with Ankylosing Spondylitis, Fibromyalgia and Osteoarthritis. Please contact us through the below form or email firstname.lastname@example.org for more information about this study and how to partake.